One of the evening fringe events I went to last night was about care for those who are dying. A Marie Curie nurse spoke impressively and movingly about caring for people dying of cancer. Apparently there are 2,000 of these Marie Curie nurses and it sounds as though they act very well in helping people die in their own home and helping the families to deal with this traumatic experience. The nurse was sensitive and sensible. It sounds like an excellent charity.
An important theme of the evening, coming from the other three speakers rather than the Marie Curie nurse, however, was about how the government should give more money to 'palliative' care for those who are dying. The Conservative spokesman on the subject, for example, said that his party wants the percentage of funding given to hospices to be raised from 35% of their expenditure to 40%. He said the hospices would not want 50% as it would endanger their independence.
I questioned whether raising the level of government was really a good idea.
It seemed to me that there was a series of related, possible drawbacks:
1. The more money that is given by the government to the hospices, the more the government will want to dictate how the money is spent, the nature of the care, the nature (and cost) of the training and how teh care is delivered. The more money given, the more the independence of the hospices could be undermined.
2. In consequence the morale of those within the hospice movement could be undermined. We have already seen how the morale of doctors and nurses in the NHS has been damaged. It would be a pity for the same to happen to those working in the hospice movement.
3. At present, those working in the hospice movement are universally admired and respected. They receive esteem which, I think it is fair to say, is greater than that received by those working in the NHS. They receive it partly because their work requires great qualities of character - patience, outstanding bravery and sensitivity for example. But they also receive admiration because people somehow understand that those working in hospices are working largely as an act of philanthropy. They are not just doing a job. These are charity workers with a powerful philanthropic drive.
The more the state may come to fund and dominate hospices, the more this huge respect could be endangered.
4. The more the government comes to dominate, the worse the service is likely to become. At present I suspect it is terrific. But if the government were in the driving seat, the same might happen to the quality of care as has happened to the quality of medical and social care in the NHS.
5. The more money given by the government, the less that charitable donors are likely to be willing to give. People like to feel, when they are giving money, that they are filling a vitally important human need. They don't like to feel they are just helping the government with its finances. The more the government is involved, the more people will feel the hospices are just part of government spending.
6. At first, the amount of care provided by hospices would probably be sustained or even improved by the deployment of government money. But we have already seen in other areas of the NHS that provision is at first increased only to be decreased later. This has happened in the provision of GP services, for example. Care for the elderly in their own home and provided by government falls well short of what is needed after much was promised. The number of care home places has actually fallen at a time when the number of elderly has increased. The same kind of thing could happen to the hospice movement.
A member of the audience who works professionally in this area of 'palliative care' said that the discussion about financing was about to become obsolete because the government was in the process of deciding, through its agency NICE, that hospice care is something that the NHS should finance. So it would become entirely a matter of government finance. I don't know how much truth there may be to what he suggested. It seemed to be news to the Tory spokesman on the subject.
In any case, I fear that the hospice movement - as an independent, excellent, admired charitable movement - may be under threat.
For the time being, however, I suspect it remains mostly funded by charitable donations and the hospices are, I expect, among the most worthwhile of charities to support.
Posted by James Bartholomew • Indexed in Care for the elderly
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Doubtless after Bleugh's intervention we will have a Hospice Monitoring Agency, Hospice Standards, and as ever, all will be paperwork, and nothing to do with care of the dying.
It'll be like the Independent Schools ; if they won't take in the wonderful National Curriculum (drivel) and OFSTED (incompetent) then they'll bully them.
Posted by: Paul at October 6, 2005 04:34 PM
James,
Your point is a fair one. However, in an era where the government taxes over 40% of naional income in taxes, the amount left for the public for charitable donation is limited.
It's not the fault of hospices. They can't change the world on their own and as government takes 40% of all money they look to that source for 40% of their income.
Of course, it would be better if the government only took 20% of national income, leaving more money for other sources to give to hospices.
Posted by: HJHJ at October 6, 2005 08:52 PM
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For goodness sake let’s keep big government, and their stupid targets, out of this area. (In hospices, will the NHS target be to maximise life span?)
The more big government gets involved, the more various ideological intellectuals will see this as an area in which to build their careers. Bishops, mullahs, and religious pressure groups will all have something perverse to say. The media, politicians, and the police will also exploit this area for their own ends.
In the past, doctors and nurses, when left alone to practice their skills out of the spotlight were usually capable of minimising the suffering experienced by terminally ill patients. Yes, (shock, horror), a good dose of morphine and to hell with the armchair idiots who are strong on morals and ethics, but weak on empathy and compassion.
We now have the situation where all the bleeding hearts want to monitor hospices, predatory lawyers monitor the actions of hospice personnel, and terminally ill patients have to die in agony as a result.
I just hope when my time comes that my doctor has the courage to despatch me with the common sense displayed by all veterinary surgeons towards their patients.
Posted by: John East at October 6, 2005 12:53 AM